Saturday, January 14, 2006

Spencer & William...the early days

Spencer was a great baby. He ate and he slept and seriously, he rarely cried. We tried letting him sleep in the bassinet in our room but he made wayyyy to many noises at night. He may have missed his brother, but he was A-OK in his crib. He didn't complain about anything!

William stayed in the NICU. Each day, Tom & I took turns going to/from the hospital (30 min each direction). They tried to teach him to such but, in hindsight, they didn't try that hard. They began to talk to me about his reflux issues. Then, they placed a feeding tube in his nose (NG tube) and began to finish his 'feeds' via the tube, when he didn't finish a bottle. We lived via the nurses notes about how many ounces he ate on his own vs the tube. They began to talk to me about placing a G-tube and doing a Nissen Fundoplication for his reflux. Well, I googled both and didn't like the sound of the Fundo. In fact, Consumer Reports had a 'top 10 list of procedures to be avoided' and it was on the list. After a few days though, William was doing better eating and we seemed to be good with the NG Tube at the moment.

About that time, we were told that they would like to perform genetic testing on William. They felt that he had a couple of unusual character markers (lower ears, something weird with his thumb that I never understood and an ASD). I said, "No problem" because I knew my baby was perfectly fine. In fact, a few days later when the genetic department called for a meeting, Tom was there and I said he could go alone as I was sure it was just to tell us nothing.

I was wrong.

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